November 29, 2022

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Dominic Update 4.0 – Brown Eyed Baker

Hi all people! I simply cannot consider that we are on the cusp of Labor Day and summer coming to a near. The last 5 to six months have been a whole blur and this summer season, in specific, has flown by. There is been hospitals (chemo, stem mobile harvest, surgical treatment), clinic appointments, and driving again and forth to New York.

But, one particular foot in front of the other and just one day at a time, we are grateful to be heading into a new period with a potent boy and hearts whole of hope.

Dominic experienced a busy to start with handful of weeks of August…

🔍 Very first, he experienced a new set of scans (MRI + MIBG) moreover another bone marrow biopsy. The scans even now clearly show illness in the course of his bones but most of the places are “dimmer” than before, and the bone marrow involvement diminished by above 50%.

So, there is nevertheless work to do, but there is an advancement. And! Dominic did both of the scans with out anesthesia (he has been sedated beforehand simply because you have to lay wholly even now and the MIBG is in excess of 2 several hours). He’s a rock star.

🏥 Following, he had his to start with round of immunotherapy. The antibody he’s offered targets the protein of neuroblastoma cells and since they generally sit on nerve cells, there is considerable nerve suffering accompanying the therapy. The infusion is short (45 minutes) but intense.

There is a ton of pre-treatment and agony management throughout and immediately after, and he would generally sleep the full relaxation of the day afterward. But, the treatments are outpatient so no medical center stays, and they do not impact counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off yet another massive hurdle… radiation. He did this awake with no anesthesia as well… twice a working day for 5 times, he was strapped down using a unique mask that was molded to his head and higher body to preserve his head and neck in the specific identical posture each individual time (his clavicle was radiated thanks to the cluster of diseased lymph nodes that ended up there, as perfectly as the tumor bed in his abdomen). An remarkable woman who operates there has the youngsters decide on what they want their masks to be and then personalized paints them… Dominic chose Iron Guy. There are some exceptionally unique individuals in this environment.

He could also decide on whatever audio he needed to be piped in each time and selected Xmas tunes each and every working day 💕🌲 He absolutely rocked it and the folks performing there ended up definitely phenomenal.

➡️ Next… we get to be household for a couple of weeks, then it’s again to NY for a different spherical of immunotherapy, a new established of scans, and a further bone marrow biopsy. 

📘 In the meantime, he started out kindergarten this week! He’ll be signing up for class almost till his oncologist gives him the go-forward to show up at in individual, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all started expanding again! He’s had a ton of power, has acquired again all of the weight he missing right after medical procedures and that final round of chemo and is usually undertaking definitely, definitely effectively.

❤️ Thank you all for your continued prayers, it implies so much to our loved ones.


In other news, I am organizing to get some emails scheduled out heading into the slide and holiday year to refresh some web page content material. So, you can appear forward to me popping into your inbox much more routinely in the coming months 🎉